Showing posts with label alzheimers. Show all posts
Showing posts with label alzheimers. Show all posts

Tuesday, June 22, 2010

Another Infusion

W and I took his mom in for treatment again today; every other week she goes in for these infusions, and all considered, this particular session was probably the best one she's had. It's definitely the best one I've been present for. They gave her a valium to help her relax (part of the disease is generalized anxiety, especially when outside of familiar surroundings), set up the line for the infusion, and she slept through the majority of it, while W and I were able to get out and go get something to eat during the middle part of the treatment.

Overall, these treatments seem to be making a difference - not necessarily improving her short term memory or her ability to retain new information, but definitely having markedly slowed (possibly stopped) the slide that she was on prior to starting this course.

We got her back to W's house after the transfusion, and she was doing pretty good - a little sleepy from the valium still, but mostly well balanced and emotionally stable. Now she's become combative and frustrated, indignant and childish. A few moments ago she hollered at W that she wants to move out, and told me that "[she] should go to an old folks home."

That isn't happening. Not only would she hate it, but W would hate it, and I would hate it, and the entire situation would be taxing in a completely different way - a way that would eat all of us from the inside out. I read somewhere that life isn't always about making the right choices - its about making a choice and then being able to live with the consequences. I know that this is one of those times.

I don't know how W does it - he does this all the time, and this is his mom. I at least have some distance from it, though I do care deeply about them both.

I just know, as well as he does, that he could never, ever live with putting her somewhere else.

W is my best friend, my better half (a saying I never thought I'd be able to mean when I used, until he came into my life); he brings out a side of me that I never knew I had. When I'm not with him, its as if a half of me is missing. I am sure that I have said this before, and I will probably say it again (over, and over, and over).

When two people agree to get married, they are, also, making the agreement to be the one that outlives the other.

I have no idea what that would look like.

In more ways than I really like to admit, the man makes me the woman I am.

Lets talk a little bit more about W's mom though, the one undergoing treatment. She will, from here on out, be known as B. B is 86 years old - she was born in 1924 - and she misses her first husband incredibly. He's been gone nearly forty years, and she still talks about him all the time - I don't know how much of an active of a missing this is, except around the holidays, and particularly around Christmas - and I know that she misses him incredibly then, and talks of him with great fondness often. B grew up on the east coast, and she was an incredible marksman in her youth. She loves golf (a sport I have yet to fully appreciate), and order - a clean house, good meals, gardening and plants. She's not as good at these things as she was in her youth, and they are the stories W tells me continuously.

That man loves his mother so much. He deserves so much credit that he'll never get; the things he does for her are things that I'm sure others across the nation do for their parents every day, and they all deserve so much more support and compassion and respect than anyone will ever know. It is amazing, and heartbreaking, to see such love.

She (B) has her good days and her bad days, like all of us, and I can only imagine what it's like for her to be entirely across the country from the area she was born and raised. I can only imagine what it must be like to be old in a society where technology advances so quickly that even those who create it can barely begin to keep up. I can only imagine what it's like to have a disease that destroys your brain - kills off the nerve cells necessary for cognition and disintegrates your relationship with the world around you.

I know what it's like at the other end.

Tonight we've tried to keep her seated, so that she wont fall from the disorientation caused by the medication she's been given; her response was to yell at W that, "You sit! You're fat! You're nice and fat, you do the sitting!" He went outside to take a breather, she insisted on going to the bathroom, so I watched down the hall to make sure she'd stay steady and on her feet as she went along. When she came back, she proceeded to tell me how horrible he is, and how if he kept up this sort of behavior she'd leave. She went to the kitchen, did some dishes (under my distant but watchful eye), and began to run the dishwasher. Something as simple as my reminder that we don't run the dishwasher until after eight began another tirade, this time directed toward me. W stepped in then, they argued for a moment, and she left, off to her room as we watched her, guarding her balance from afar.

We remember that the person that's combative isn't B. We remember that the hurtful words and the anger and the anxiety and the yelling and the screaming... that's the disease. That's what Alzheimers leaves in its wake; Dis Ease.

The blessing is that in the morning, she will have forgotten. It may not even take that long. She wont remember that she's angry, and we'll get a fresh start - a fresh B, a slate that hasn't tipped sideways yet, and off into oblivion.

She's back now, and she's feeding the bird.

Tuesday, May 11, 2010

Learning Humility

I am not a religious person; there are a lot of reasons for that, none of which do I particularly care to discuss.

I am, at the same time, a deeply spiritual person.

I believe that there is a greater order to the universe, and that I am not the highest power in it.

Days like today... I remember that.

My fiance's mom has Alzheimers, and she is currently undergoing treatment for that. Every two weeks, he takes her to the doctor's office, they give her a mild sedative to help with the anxiety, she receives an infusion , and he brings her back home.

The entire process (from leaving the house to returning) takes about four and a half hours. Then it is another several hours before the disorienting effects of the sedative wear off enough that she can safely be left alone to go to bed.

Separated from her 'familiar' surroundings, she oscillates between being relatively cognizant and aware, and alternatively, being combative, anxious, frustrated, and confused.

This is the nature of her disease.

She doesn't always know where she is going. She doesn't always know that she's been.

She becomes irritable and scared and I absolutely cannot fault her; it's got to be a terrifying thing to flux in and out of a world you barely know.

I watch my fiance, with seemingly endless patience, help his mother in and out of the car, in and out of the office, in and out of that state of paranoia. He answers her questions, he makes sure she is cared for, he makes her life as simple and easy and livable as anyone possibly could.

I answer a question, I answer it twice. I answer it, and I answer it, and I answer it, and then, for a few relieving moments it is quiet. And then she asks it again.

And, at the end of the day, I am human.

I get mad because this wasn't what I thought I signed up for.
I get mad because my patience wears thin.
I get mad because when I get angry, I feel as though I'm not good enough.
I get mad because I have no idea what the future is going to hold.

I get mad because I get scared that the entire situation is so completely beyond my control.

There is nothing I can do to change the effects of her Alzheimers.
I cannot make the pain, the sorrow, the frustration any easier for W - nor would it be of service to either of us for me to do so, though I so much wish that I could.

I can be there.
I can help W remember to breathe.
I can help him watch his mom, so that we can work in shifts.
I can support and encourage, and try to remember that there is something to be learned, to be gained from all of this.

It is hard to practice patience.

It is hard to see love in such a form.

It is hard to watch someone I love go through something like this.

It is hard to go through it myself, whatever separation I may have.

It is not easy; that I know. I also know that inside every pain, there is a beauty to be found, if only I can find it and focus.

I am not the highest power in this Universe, and on days like today, I remember that.